Dear Impossible Decision

Dear Impossible Decision,

I wish you hadn’t turned up. I have enough on my plate without you arriving uninvited, demanding my attention and refusing to leave until I’ve made up my mind.

Of all the challenges life has thrown at me, you might just be one of the most difficult.

I’ve faced incurable cancer, survived two admissions to intensive care, endured major surgery, pneumonia, a collapsed lung, major organ failure, a perforated duodenum and more medical complications than I care to count. I’ve learnt to live without being able to eat or drink, and I’m still trying to recover my strength while my heart insists on beating to its own irregular rhythm.

And now, just when I could do with a little breathing space, along you come.

You have presented me with a choice I never wanted to make.

What makes this especially difficult is that I don’t want to stop living in order to protect myself from the risks of living. But neither do I want to gamble recklessly with a body that has already endured so much.

I’ve tried looking at you from every conceivable angle. I’ve weighed up the risks, considered the consequences, consulted the experts and interrogated my instincts. Unfortunately, you remain stubbornly impossible.

Whichever path I choose, it will be walking into a fog of uncertainty.

Continuing immunotherapy means accepting risks that nobody can fully quantify. Stopping means potentially surrendering a treatment that has helped keep me alive, with no opportunity to return to it.

I cannot wait indefinitely for the fog to clear. The decision has a deadline, and certainty isn’t going to arrive in time.

So I must do something extraordinarily difficult: choose a path without being able to see its ending. And perhaps that is the hardest part of all. Not the walking, but the not knowing.

I’ve come to realise that you aren’t necessarily a test of my courage, intelligence or judgement. Sometimes life simply presents us with choices that have no obvious right answer. The best we can do is gather the information available, listen carefully, think deeply and make the decision we can live with.

I also know that making a decision doesn’t mean I have to stop being frightened of its consequences. Courage and uncertainty are perfectly capable of occupying the same room.

I want to live. I want more mornings, more walks, more conversations, more ordinary days and more extraordinary moments with the people I love.

I want the opportunity to keep being me.

And that is precisely why this decision matters so much.

So, Impossible Decision, here’s what I intend to do.

I will listen to the medical expertise available to me. I will ask difficult questions, examine the risks and resist the temptation to manufacture certainty where none exists.

I will acknowledge my fears without allowing them to make the decision for me.

I will remember that hope and caution are not enemies. They can sit at the same table and help me think.

And I will remind myself that whatever happens, I am not being asked to prove how brave I am. I’ve already done enough of that.

I’m being asked to make the best decision I can with the information available, knowing that the outcome cannot be guaranteed.

I cannot control everything that happens next. I cannot negotiate a cast-iron promise from cancer, immunotherapy or my own body.

But I can insist that this decision is approached with care, honesty and a profound respect for the life I’m trying so hard to preserve.

I don’t know yet which path I’ll take.

I do know that I won’t mistake uncertainty for surrender, or caution for cowardice.

And if the outcome isn’t what I hoped for, I will try not to judge today’s decision using knowledge that only tomorrow could have provided.

Because an outcome is not a verdict on the wisdom of the decision.

So, Dear Impossible Decision, you may have arrived at my door without an invitation, but you don’t get to take away my determination, my gratitude or my appetite for life.

You can make me think. You can make me worry. You can make me lose a sleep.

But you cannot make me stop hoping.

Yours, ever vigilant, forever hopeful and still ploughing on,

The Head of Not Giving Up

P.S. In the meantime, please stop pacing around my head. You’re wearing out the carpet.

16 thoughts on “Dear Impossible Decision”
  1. I don’t no what to say John – other than you might be the most remarkable man I’m likely to ever encounter.

    Youve taken your terrible health issues , made friends with them and shared the results to benefit all of us.

    Thankyou

    1. Thank you Andrew, it is a situation I never thought I’d find myself in but sharing thoughts and posts is a way of helping others in need.

      John

  2. I have to agree with Andrew. He expressed my feelings more eloquently than I can. I have definitely taken inspiration by the way you face everything with strength and Grace. Whatever decision you make. I’m sure it will be the right one.

    1. Thank you Thomas, finding the words is never easy but if it provides some sort of support and inspiration then it is always worth it.

      John

  3. I admire you so much, and your methodical and thoughtful way of leading your life and making decisions. I hope that you remember that you are in my prayers always.

  4. John,
    Your optimism and determinism has given me so much comfort in the past 3 weeks after the unexpected death of my wife of 51 years.
    Would I go back 3 weeks and tell her to “fight the f*cker”? YES, Yes I would. We’re living in the 21st Century for a reason, we’ve got the medicine, we’ve got the people, use it.
    Would I be right in doing that? I don’t know.
    She was in poor health and any respite would be just for me. Her quality of life would be minimal.
    I have fantastic friends and family around me who are helping me to get through these times.
    You have been a beacon of optimism in dark times.
    I can’t and won’t advise you on the course you take, but whichever course it is please know that you have made a great difference to at least one stranger in this world.
    I’ve re-read that last sentence and I’d like to say, friend.
    Good luck on whatever path you take but be assured, you’ll always be a beacon of strength and hope.
    Looking forward to your 2027 words of wisdom 🙂

    1. Hi Dave, I really am very sorry to read of your wife’s passing. I am humbled if I have helped in any small way and of course, making a difference is why I post what I do so that we may share each other’s strengths and vulnerabilities.

      All my very best,

      John

  5. Dear John, I’ve been following your story for quite anhile and saved many of your posts. I hope reread them, and be reminded of the joy you’ve spread, and hope & optimism you’ve found under the most dire situations, when the day arrives that I face the same or just when I need to put things back in perspective. Good luck with your difficult decision- I know you will choose the best for you. And, I know you will continue to beat the odds until your last breath. Your family must be comforted by the knowledge that your love for life, and them, has taken you this far and has been stronger than the forces that tried to make you quit. Love always wins!

    1. Thank you Wendy, it means a lot to have people in my corner and cheering me on.

      All the best

      John

  6. Countless people’s admiration, John, is no balm for the soul, considering the decision you are being forced to make. But we all stand in support of you, sending love and prayers your way, many of us hopeful that should we find ourselves in similar situations, we face could face it with a modicum of the dignity and strength we’ve all come to know as your default mode.

  7. Dear John,

    I have been following you for a while and admire your positive view on life and the impact you have on others everyday by sharing your story. I am sending you extra strength and positivity today.
    You are saying “impossible decision” – maybe this is the point where we need to advocate for the so called impossible being made possible. There must be a way for you to carry on with immunotherapy when you are ready.

    I believe you already considered all routes, just in case you haven’t:

    1. File an Individual Funding Request (IFR)

    The strict “no reapplication” rule is a standard guideline, but the NHS features a formal exception process. Your oncology team can submit an NHS Individual Funding Request (IFR) on your behalf.

    The Evidence: Because your treatment break was medically necessitated by major surgery, ICU admissions, pneumonia, and atrial fibrillation—rather than the treatment failing— you have a strong clinical argument that your body required a temporary break to safely resume.

    The Strategy: The appeal must argue that your case presents “exceptional clinical circumstances.”

    2. Leverage your “Super-Responder” Status

    Medical data is a powerful tool in funding appeals. Your medical team can formally document that you have had over 75 successful infusions and has historically shown “no evidence of disease” on scans.

    Proving you are a documented “super-responder” means resuming therapy is highly likely to be clinically effective once your body recovers, making the case for renewed funding much stronger than a standard reapplication.

    3. Request an Independent Second Opinion

    If your current hospital trust feels bound by local funding restrictions, You have the legal right under the NHS Constitution to request a referral to another specialist or a dedicated cancer center (such as The Royal Marsden). A specialized tertiary center may have alternative funding pathways or different clinical interpretations of the resumption safety rules.

    4. Apply for a Pharmaceutical Compassionate Use Program

    If the NHS strictly refuses to fund the resumption, the drug manufacturer may step in. Many pharmaceutical companies operate Compassionate Use or Patient Access Programs. If an oncologist requests the drug directly from the manufacturer on compassionate grounds—arguing the patient was thriving on it but forced off by temporary surgical complications—the company will sometimes provide the drug free of charge outside the NHS budget.

    Wishing you all the best! Much love!
    Anja

    1. Dear Anja,
      What a wonderful message to open up. You are clearly clued up and I feel emboldened and fortified by the options still available. Thank you for taking the time to write these out as it has certainly helped me to organise my thoughts a lot more!
      I’m very grateful to you,

      All my best

      John

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